Blog Posts

Jennifer's contributions to the Genomics Law Report are available here and here.

Her contributions to the Pennsylvania Bar Association’s Cybersecurity and Data Privacy Committee’s blog:

  1. “Proposed changes to the FTC Health Breach Notification Rule.” June 14, 2023. Available here.

  2. “One Step Closer to Federal Data Privacy Law Reform: H.R. 8152, the American Data Privacy and Protection Act (ADPPA)” July 27, 2022. Available here.

  3. “Updated DHHS OCR Guidance on Health Information Privacy After Dobbs” July 27, 2022. Available here.

  4. “A Post-Roe Future Presents Heightened Data Privacy Risks” June 1, 2022. Available here.

  5. “Current Status of Biometrics Data Protections Within and Beyond Pennsylvania” May 27, 2022. Available here.

  6. “FTC Issues Policy Statement Clarifying Data Privacy Obligations for Digital Health,” Sept. 22, 2021. Available here.

  7. “Department of Homeland Security Hits the Reset on its Plans to Expand Biometrics.” May 24, 2021. Available here.

  8. “The FTC takes aim at Zoom.” Dec. 11, 2020. Available here.

  9. “First City in Pennsylvania Passes Ordinance on Controversial Facial Recognition Technologies.” Oct. 26, 2020. Available here.

  10. “A Dramatic Expansion of Biometrics Proposed by Department of Homeland Security.” Sept. 22, 2020. Available here.

  11. “Emerging COVID-19 Exposure Notification Technology, Data Privacy, and Cybersecurity Issues.” Jun 1, 2020. Available here.

  12. “FTC Undertakes 10-Year Review of Health Breach Notification Rule, Seeks Public Comments.” May 19, 2020. Available here.

Scholarly Articles

  1. CD Schmit, MJ Doerr, JK Wagner. “Leveraging IP for AI Governance.” Science. 2023; 379(6633):  646-648. DOI: 10.1126/science.add2202.

  2. JK Wagner, J-H Yu, D Fullwiley, C Moore, JF Wilson, MJ Bamshad, CD Royal; on behalf of the Genetic Ancestry Inference Roundtable Participants. “Guidelines for Genetic Ancestry Inference Created Through Roundtable Discussions” Human Genetics and Genomics Advances.  Published online January 13, 2023. DOI: https://doi.org/10.1016/j.xhgg.2023.100178 Available here.

  3. E Kowal, LS Weyrich, JM Argüelles, AC Bader, C Colwell, AD Cortez, JL Davis, G Figueiro, K Fox, RS Malhi, E Matisoo-Smith, A Nayak, EA Nelson, G Nicholas, MA Nieves-Colón, L Russell, S Ulm, F Vergara-Silva, FA Villanea, JK Wagner, JM Yracheta, KS Tsosie. “Community partnerships are fundamental to ethical ancient DNA research.” Human Genetics and Genomics Advances. Published online January 11, 2023 DOI:https://doi.org/10.1016/j.xhgg.2022.100161 Available here.

  4. JK Wagner. “Algorithmic Fairness in the Roberts Court Era.” Pac Symp Biocomput. 2023;28:519-530. PMID: 36541005; PMCID: PMC9782697. Available here.

  5. JK Wagner, JK Tanniru, CA Chane, MN Meyer, “Exploring Access to Genomic Risk Information and the Contours of the HIPAA Public Health Exception” Journal of Law and the Biosciences. 2022; 9(2):lsac034. https://academic.oup.com/jlb/article/9/2/lsac034/6884060 PMID: 36518815; PMCID: PMC9740515. Available here.

  6. K Tolwinski, D Madden, JK Wagner. A genetic imaginary for social justice: the rhetoric of genomic medicine as exceptional, ordinary, and ethical obligation. SSM Qualitative Research in Health. Early access ahead of print June 25, 2022 (Vol. 2 publication date Dec. 2022). Available here.

  7. RE Fleskes, AC Bader, KS Tsosie, JK Wagner, KG Claw, NA Garrison. Ethical Guidance in Human Paleogenomics: New and Ongoing Perspectives. Annual Review of Genomics and Human Genetics. 2022; 23:1. Early access ahead of print May 10, 2022. (Vol. 23 publication date Aug. 2022). Available here.

  8. Katsanis SH, Claes P, Doerr M, Cook-Deegan R, Tenenbaum JD, Evans BJ, Lee MK, Anderton J, Weinberg SM, Wagner JK. “U.S. Adult Perspectives on Facial Images, DNA, and Other Biometrics,” IEEE Transactions on Technology and Society. 2022; 3(1): 9-15. DOI: 10.1109/TTS.2021.3120317 (Early Access version published Oct. 18, 2021) Available here.

  9. Katsanis SH, Claes P, Doerr M, Cook-Deegan R, Tenenbaum JD, Evans BJ, Lee MK, Anderton J, Weinberg SM, Wagner JK. “A survey of U.S. public perspectives on facial recognition technology and facial imaging data practices in health and research contexts.” PLoS ONE 2021; 16(10): e0257923. https://doi.org/10.1371/journal.pone.0257923 (Published Oct. 14, 2021). Available here.

  10. D Madden, B Baker, JK Wagner, SH Katsanis, “Framing the utility and potential pitfalls of relationship and identity DNA testing across United States immigration contexts,” Human Genetics and Genomics Advances published online Sept. 24, 2021 https://doi.org/.116/j.xhgg.2021.100060 Available here.

  11. JK Wagner, J-H Yu, JX Chong, CD Royal, MJ Bamshad. “Centering Equity in Human Genetics and Genomics Advances,” Human Genetics and Genomics Advances. 2021; 2(4): 10048. https://doi.org/10.1016/j.xhgg.2021.100048 Available here.

  12. A DiNucci, NB Henrikson, MC Jonas, S Basra, P Blasi, J Brown, ED Esplin, D Hassen, J Hao, Y Hu, T Klinger, I Ladd, K Leppig, M Lewis, M Meyer, S Ney, A Ramaprasan, K Romagnoli, Z Salvati, A Scrol, R Schwiter, L Sheridan, B Somasundaram, P Suwannarat, JK Wagner, AK Rahm. “Feasibility and Assessment of a Cascade Traceback Screening program (FACTS): protocol for a multisite study to implement and assess an ovarian cancer Traceback cascade testing program,” Journal of Personalized Medicine 2021; 11(6): 543. https://doi.org/10.3390/jpm11060543 Available here.

  13. E Barnert, SH Katsanis, R Mishori, JK Wagner, RF Selden, D Madden, et al. “Using DNA to reunify separated migrant families,” Science 2021; 372 (6547): 1154-1156. Available here.

  14. JK Wagner and MN Meyer. “Genomic Medicine and the ‘Loss of Chance’ Medical Malpractice Doctrine.” Human Genetics and Genomics Advances. 5 Apr 2021. Available here.

  15. D Berger, M Hu, SH Katsanis, and JK Wagner. “Biometrics and Midnight Regulations.” The Regulatory Review. March 11, 2021. Available here.

  16. N Henrikson, JK Wagner, H Hampel, C DeVore, N Shridhar, JL Williams, KE Donohue, I Kullo, AER Prince, “What guidance does HIPAA offer to providers considering familial risk notification and cascade genetic testing.” Journal of Law & the Biosciences. 2020. Available here.

  17. CK Rubanovich, R Taitingfong, C Triplett, O Libiger, N Schork, JK Wagner, C Bloss. “Impacts of Personal DNA Ancestry Testing.” Journal of Community Genetics. 2020. ePub ahead of print. Available here.

  18. JK Wagner, C Colwell, KG Claw, AC Stone, DA Bolnick, J Hawks, KB Brothers, NA Garrison, “Fostering Responsible Research on Ancient DNA,” American Journal of Human Genetics, 2020;107(2):183-195. Available here.

  19. WS McDonald, JK Wagner, PA Deverka, LA Woods, J Peterson, MS Williams. “Genetic Testing and Employer-Sponsored Wellness Programs: An Overview of Current Vendors, Products, and Practices” Molecular Genetics & Genomic Medicine. 26 Jul 2020. Available here.

  20. M Doerr and JK Wagner. “Research Ethics in a Pandemic: Considerations for the Use of Research Infrastructure and Resources for Public Health Activities.” Journal of Law & the Biosciences. 2020; 7(1). lsaa028. Available here.

  21. JM Savatt, JK Wagner, S Joffe, et al. “Pediatric Reporting of Genomic Results Study (PROGRESS): A mixed-methods, longitudinal, observational cohort study protocol to explore disclosure of actionable adult- and pediatric-onset genomic variants to minors and their parents” BMC Pediatrics. 2020; 20: article 222. Available here.

  22. JK Wagner. “Health, Housing, and ‘Direct Threats’ During a Pandemic,” Journal of Law & the Biosciences. 2020; 7(1). lsaa022. Available here.

  23. JK Wagner. “The Federal Trade Commission and Consumer Protections for Mobile Health Apps.” Journal of Law, Medicine, & Ethics. 2020; 48 (Supp.1):103-114. Available here.

  24. JK Wagner, DJ Madden, V Oray, SH Katsanis. “Conversations Surrounding the Use of DNA Tests in the Family Reunification of Migrants Separated at the US-Mexico Border in 2018,” Frontiers in Genetics 2019; 10:1232. doi: 10.3389/fgene.2019.01232. Available here.

  25. JK Wagner. “Ethical and Legal Considerations for the Inclusion of Underserved and Underrepresented Immigrant Populations in Precision Health and Genomic Research in the US” Ethnicity & Disease. 2019; 29 (Supp. 3): 641-650. Available here.

  26. K Tolwinski, A Nemoianu, A Bucaloiu, J Venditto, FD Davis, JK Wagner. “‘I don’t want to go on living this way’: Desire for hastened death and the ethics of involuntary hospitalization.” American Journal of Bioethics. 2019;19(10):88-90. Available here.

  27. CJ Guerrini, JK Wagner, SC Nelson, GH Javitt, and AL McGuire.Who’s on third? regulation of third-party genetic interpretation services." Genetics in Medicine. 2019;22:4-11. https://doi.org/10.1038/s41436-019-0627-6 Available here.

  28. D Sero, A Zaidi, J Li, J White, T González Zarzar, M Marazita, S Weinberg, P Suetens, D Vandermeulen, J Wagner, M Shriver, and P Claes. "Facial Recognition from DNA using face-to-DNA classifiers." Nature Communications. 2019; 10: 2557.https://doi.org/10.1038/s41467-019-10617-y Available here.

  29. JK Wagner. “Disparate impacts and GINA: Congress’s unfinished business.” Journal of Law and the Biosciences. 2018; 5(3): 527-549. https://doi.org/10.1093/jlb/lsz003. Published May 25, 2019. Available here.

  30. Y Bombard, KB Brothers, S Fitgerald-Butt, NA Garrison, L Jamal, CA James, GP Jarvik, JB McCormick, TN Nelson, KE Ormond, HL Rehm, J Richer, E Souzeau, JL Vassy, JK Wagner, and HP Levy. “ASHG Position Statement: The Responsibility to Recontact Research Participants After Reinterpretation of Genetic and Genomic Research Results" American Journal of Human Genetics. 2019; 104(4): 578-595. DOI: https://doi.org/10.1016/j.ajhg.2019.02.025. Available here.

  31. SH Katsanis, E Huang, A Young, V Grant, E Warner, S Larson, and JK Wagner. “Caring for Trafficked and Unidentified Patients in the EHR Shadows: Shining a Light by Sharing the Data” PLoS One. 2019; 14(3): e0213766. https://doi.org/10.1371/journal.pone.0213766. Available here.

  32. EA Wright, JK Wagner, MD Shriver, JR Fernandez, and NG Jablonski. “Practical and ethical considerations of using the results of personalized DNA ancestry tests with middle-school-aged learners” American Journal of Human Genetics. 2019; 104(2): 197-202. DOI:https://doi.org/10.1016/j.ajhg.2019.01.001 Available here.

  33. M Doerr, S Grayson, S Moore, C Suver, J Wilbanks, J Wagner. “Implementing a universal informed consent process for the All of Us Research Program.” Pacific Symposium on Biocomputing 2019; 24: 427-438. Available here.

  34. SC Nelson, J-H Yu, JK Wagner, TM Harrell, CDM Royal, MJ Bamshad. “A qualitative content analysis of the views of genetics professionals on race, ancestry, and genetics” AJOB Empirical Bioethics. 2019: 9(4): 222-234. doi: 10.1080/23294515.2018.1544177. Available here.

  35. MS Williams, AH Buchanan, FD Davis, WA Faucett, MLG Hallquist, JB Leader, CL Martin, CZ McCormick, MN Meyer, MF Murray, AK Rahm, MLB Schwartz, AC Sturm, JK Wagner, JL Williams, HF Willard, DH Ledbetter. “Patient-Centered Precision Health In A Learning Health Care System: Geisinger’s Genomic Medicine Experience.” Health Affairs. 2018; 37(5): 757-764. Available here.

  36. T Turner, JK Wagner, and G Cabana. “Ethics in Biological Anthropology.” American Journal of Physical Anthropology.2018; 165: 939-951. DOI: 10.1002/ajpa.23367 Available here.

  37. HM Rocha, JM Savatt, ER Riggs, JK Wagner, WA Faucett, CL Martin. "Incorporating Social Media into your Support Tool Box: Points to Consider from Genetics-Based Communities. Journal of Genetic Counseling. 2017 Nov 31. DOI: 10.1007/s10897-017-0170-z Available here.

  38. AH Buchanan, K Manickam, MN Meyer, JK Wagner, et al. "Early cancer diagnoses through BRCA1/2 screening of unselected adult biobank participants." Genetics in Medicine. 2017. DOI:10.1038/gim.2017.145 Available here.

  39. D Nicol, et al. "Key Challenges in Bringing CRISPR-mediated Somatic Cell Therapy into the Clinic” Genome Medicine. 2017; 9:85 DOI 10.1186/s13073-017-0475-4. Available here. 

  40. J Ifekwunigwe, JK Wagner, J-H Yu, M Bamshad, CD Royal. “A Qualitative Analysis of How Anthropologists Interpret the Race Construct.” American Anthropologist. 2017; 119(2): 422–434. DOI 10.1111/aman.12890 Available here.

  41. Wagner JK. "DNA, Racial Disparities, and Biases in Criminal Justice: Searching for Solutions” Albany Law Journal of Science & Technology. 2017; 27(2): 95-138. Available here.

  42. E Huang and JK Wagner. “The Indefinite ‘Stay’ on Regulatory Reforms for Research with Prisoners.” American Journal of Bioethics. 2017; 7(1): 55-57. Published online June 29, 2017. DOI: 10.1080/15265161.2017.1328534 Available here.

  43. S Katsanis, M Felini, J Kim, M Minear, S Chandrasekharan, and JK Wagner. "Perspectives of women in prostitution diversion program on DNA collection for a high-risk DNA database." International Journal of Criminal Justice Sciences. 2017; 12(1):111-128. Available here.

  44. Huang E, Cauley J, and Wagner JK. "Barred from better medicine? Reexamining the regulatory barriers to the inclusion of prisoners in research." Journal of Law and Biosciences. First published online Jan. 11, 2017. DOI: 10.1093/jlb/lsw064. Available here.

  45. Wagner JK, Yu J-H, Ifekwunigwe J, Harrell T, Bamshad M, and Royal C. "Anthropologists' Views on Race, Ancestry, and Genetics." American Journal of Physical Anthropology. Nov. 22, 2016. DOI: 10.1002/ajpa23120. Available here. 

  46. JK Wagner, Peltz-Rauchman C, Rahm AK, Johnson CC. “Precision Engagement: PMI’s success will depend upon more than genomes and big data” 2017;19:620-624. Advance online publication Oct. 27, 2016. DOI: 10.1038/gim2016.165. Available here.     

  47. Nicol D, Bubela T, Chalmers D, Charbonneau J, Critchley C, Dickinson J, Fleming J, Hewitt A, Kaye J, Liddicoat J, McWhirter R, Otlowski M, Ries N, Skene L, Stewart C, Wagner J, Zeps N. “Precision Medicine: Drowning in Regulatory Soup” J Law Biosci. 2016 May 4. doi:10.1093/jlb/lsw018. Available here.

  48. Katsanis SH, Kim J, Minear MA, Chandrasekharan S, and Wagner JK. “Preliminary Perspectives on DNA Collection in Anti-Human Trafficking Efforts.” Recent Adv DNA Gene Seq. 2015. Epub 2015 Feb 16. Available here.

  49. Claes P, Liberton DK, Daniels K, Matthes Rosana K, Quillen EE, Pearson LN, McEvoy B, Bauchet M, Zaidi AA, Yao W, Tang H, Barsh GS, Absher DM, Puts DA, Rocha J, Beleza S, Pereira RW, Baynam G, Suetens P, Vandermeulen D, Wagner JK, Boster JS, and Shriver MD. “Modeling 3D facial shape from DNA.” PLoS Genetics.  DOI: 10.1371/journal.pgen.1004224. Epub 2014 Mar 20. Available here.

  50. Wagner JK, Mozersky JT, and Pyeritz RE. “‘Use it or lose it’ as an alternative approach to protect genetic privacy in personalized medicine.” Urologic Oncology: Seminars and Original Investigations. 2014; 32: 198-201. Available here.

  51. Wagner JK. “Playing with Heart and Soul…and Genomes: Sports Implications and Applications of Personal Genomics.” PeerJ. 2013; 1:e120 http://dx.doi.org/10.7717/peerj.120. Available here.

  52. Daley L-A A, Wagner JK, Himmel T, McPartland K, Katsanis S, Shriver MD, and Royal CD. “Personal DNA Activities in College Classrooms: Perspectives of Students and Professors.” Genetic Testing & Molecular Biomarkers. 2013; 17(6): 446-452. DOI: 10.1089/gtmb.2012.0404 Epub 2013 Mar 28. Available here.

  53. Wagner JK. “Sidelining GINA: The Impact of Personal Genomics and Collective Bargaining in Professional Sports.” Virginia Sports and Entertainment Law Journal. 2013; 12:81-125. Available here.

  54. Wagner JK and Royal CD. “Field of Genes: An Investigation of Sports-Related Genetic Testing.” Journal of Personalized Medicine. 2012; 2(3):119-137. doi:10.3390/jpm2030119. Available here.

  55. Wagner JK. “Out with the ‘Junk’ DNA phrase.” Journal of Forensic Sciences. 2013 Jan; 58(1):292-4. doi: 10.1111/j.1556-4029.2012.02252.x. Epub 2012 Sep 7. Available here.

  56. Katsanis SH and Wagner JK. “Characterization of the Standard and Recommended CODIS Markers.” Journal of Forensic Sciences. 2013 Jan; 58 Suppl 1:S169-72. doi: 10.1111/j.1556-4029.2012.02253.x. Epub 2012 Aug 24. Available here.

  57. Wagner J. Cockamamie state laws threaten the genetic rights movement. Nature Medicine. 2012; 18(4):485 doi:10.1038/nm0412-485. Available here.

  58. Wagner JK, Cooper JD, Sterling R, and Royal CD. “Tilting at Windmills No Longer: A Data Driven Discussion of DTC DNA Ancestry Tests.” Genetics in Medicine 2012; 14(6):586-93. doi:10.1038/gim.2011.77 Epub 2012 Mar 1. Available here.

  59. Wagner JK and Weiss KM. “Attitudes on DNA Ancestry Tests.” Human Genetics. 2012; 131(1):41-56. DOI 10.1007/s00439-011-1034-5. Epub 2011 June 23. Available here.

  60. Wagner JK. “Understanding FDA Regulation of DTC Genetic Tests Within the Context of Administrative Law.” American Journal of Human Genetics. 2010; 87:451-456. doi: 10.1016/j.ajhg.2010.09.003. Available here.

  61. Wagner JK. “Interpreting the Implications of DNA Ancestry Tests.” Perspectives in Biology and Medicine. 2010; 53(2): 231-248. doi: 10.1353/pbm.0.0158. Available here.

  62. Wagner JK. “Just the Facts Ma’am: Removing the Drama from DNA Dragnets.” North Carolina Journal of Law & Technology 2009; 11(1): 51-101. Available here.

  63. Wagner JK and Shriver MD. “Misinformation, Social Construction, and Genomic Ancestry Testing.” Science. 19 Dec 2007. (e-letter) Available here.

  64. Pfaff CL, Barnholtz-Sloan J, Wagner JK, and Long JC. “Information on ancestry from genetic markers.” Genetic Epidemiology 2004; 26(4): 305-315. DOI: 10.1002/gepi.10319. Available here.

  65. Wagner JK, Jovel C, Norton HL, Parra EJ, and Shriver MD. “Comparing quantitative measures of erythema, pigmentation, and skin response using reflectometry.” Pigment Cell Research 2002; 15:379-384. DOI: 10.1034/j.1600-0749.2002.02042.x. Available here.

  66. Wagner JK, Parra EJ, Norton HL, Jovel C, and Shriver MD. “Skin responses to ultraviolet radiation: effects of pigmentation, sex, and ancestry.” Pigment Cell Research 2002; 15:385-390. DOI: 10.1034/j.1600-0749.2002.02046.x. Available here.